HARRISONBURG, Va. (WHSV) -- A Harrisonburg girl is struggling with a rare disease and a Valley food truck is stepping up to the cause.
20-year old Haley Chico suffers from Ehlers-Danlos Syndrome, a condition that affects as many as one in 5,000 people, although to varying degrees of severity. For more than a decade, her spinal cord has been compressing into the back of her skull causing immense pain.
Just a few months ago Chico traveled to a specialist in Maryland to relieve the pressure on her brain and reduce her crippling headaches. Today she is walking on her own, but still getting three shots a day to deal with pain.
She made bumper stickers and bracelets to raise awareness and now she's feeling better, but her fight is not over.
"It's a battle everyday, and it's hard to build up strength. I'm getting stronger everyday, I'm going to physical therapy three times a week. I think the hardest part right now is just the pain, I still have head pain," said Chico.
Ehlers-Danlos Syndrome has not gotten a great deal of national attention but touches thousands of lives.
With her family struggling over the $60 thousand in medical bills, they hope for the community to come out and support the cause at Grilled Cheese Mania in Harrisonburg from 4 to 8 p.m. this Saturday.
All of the proceeds will go to Haley and her family
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